Does your child have
Agenesis of the Corpus Callosum?
If your child has been diagnosed with Agenesis of the Corpus Callosum, and you would like to participate in research, register now to be included in the study.
Introduction to the
ACC Infant Study
Our Goal:
We are seeking better ways to help children with ACC grow to their full potential by studying mental and behavioral development in infants with ACC.
ACC Infant Study
How it Works
Who Can Participate?
The parent or primary caregiver of a child who is:
- Less than 15 months old.
- Diagnosed with Agensis,
Dysgenesis or Hypoplasia of
the Corpus Callosum.
The parent or primary caregiver must be 18 or older and able to read, understand, and complete forms in English.
Participants will need to provide:
- Information about their
child’s development and their own
well-being via online surveys
and phone-based interviews,
at up to 6 timepoints before
the child turns four. - Copies of their child’s brain
scans and/or diagnostic
reports. - Saliva samples.
Participants will Receive
- Financial compensation at
each time point. - Direct behavioral
assessment at University of
Minnesota, all travel
expenses paid (only
available for some
participants in North
America).